Author: Kaitlyn Flegg
The One Retinoblastoma World Conference hosts eye and cancer specialists, researchers, parents and survivors from around the world to pursue the best possible care for all affected by retinoblastoma. Collaborative research, clinical care, and family support benefitting the majority of children and survivors can only be developed through these inclusive meetings with a real-world focus.
Since 2012, this conference has continued to encourage collaboration and networking while focusing on understanding the needs of the patient and family.
Previous in-person One Retinoblastoma World conferences have been coordinated in the same location as, and directly prior to, the World Congress of the International Society of Paediatric Oncology (SIOP). The SIOP Congress is the world’s largest annual paediatric oncology meeting, gathering thousands of medical professionals and parent/survivor advocates from every corner of the globe to share and build knowledge for children with cancer.
One Retinoblastoma World meetings are hosted by institutions and organizations local to the country holding the SIOP meeting. The meetings often include a family day and a Child Life Programming. A tiered registration fee structure is offered with lower fees for survivors, families and those from low- and middle-income countries to enable inclusive participation and collaboration.
Four One Retinoblastoma World Conferences have occurred to date:
October 2-3, 2012: London, England, hosted by World Eye Cancer Hope UK
Photo courtesy of World Eye Cancer Hope
October 26-28, 2014: Toronto, Canada hosted by The Hospital for Sick Children, Retinoblastoma Program
Photo courtesy of World Eye Cancer Hope
October 17-18, 2015: Dublin, Ireland, hosted by the Retinoblastoma Programs of Ireland and The Hospital for Sick Children
Photo courtesy of World Eye Cancer Hope
A detailed summary of the 2016 One Retinoblastoma World Meeting is available here and here.
October 9-11, 2017: Washington D.C., USA hosted by World Eye Cancer Hope USA
Photo courtesy of World Eye Cancer Hope
A summary report from the 2017 One Retinoblastoma World Meeting is available here. Additional content, including videos of the panel sessions, is available here.