The Retinoblastoma Research Champion program aims to have a diverse group of individuals affected by retinoblastoma act as volunteer ambassadors of CRRAB and its activities. Champions are members of CRRAB who draw from their own lived experience to:
- encourage sign-up to the Canadian Retinoblastoma Research Community
- Examples: repost information about the Retinoblastoma Research Community to social media groups, share information with local relevant health professionals, or seek out new retinoblastoma families through personal connections or online forums to connect them to CRRAB
- promote patient partnership in research
- Examples: share their experience in partnering in research to help others understand how they can participate, reach out to their personal network to identify other patient members to partner on research projects, or share information on upcoming CRRAB meetings
Champions share their personal story and reach out to their networks and members of their communities to promote CRRAB, using their personal and professional skills to extend CRRAB’s reach. You can read stories from past and current Champions Ivana, Jay, Jill, Leslie, Taline and Tara in the Retinoblastoma Research and You! Booklet and learn how they got on the path to becoming CRRAB partners.
If you’re interested in joining the RB Research Champion team, please contact us at retinoblastoma.research@sickkids.ca. We hope that Champions make a one-year commitment to the role and continually share information about CRRAB and our initiatives.