About Us
The Canadian Retinoblastoma Community is made up of people personally or professionally connected to retinoblastoma in Canada, including (but not limited to) patients, health professionals, and researchers. “Patient” refers to patients and informal caregivers including parents, family and friends.
The Canadian Retinoblastoma Research Community is made up of people in the Canadian Retinoblastoma Community who are interested in research. To formally join the community, individuals are encouraged to sign up online.
The Canadian Retinoblastoma Research Advisory Board (CRRAB) is made up of members of the Canadian Retinoblastoma Research Community who participate in patient partnered research and related activities and events. CRRAB was designed to be led by volunteer patients, health professionals, and researchers, with administrative support provided by the retinoblastoma research team based at The Hospital for Sick Children (Toronto, Canada).
This website was created by CRRAB to share information with the Canadian Retinoblastoma Research Community.
For more information, please visit our booklet.
The Canadian Retinoblastoma Research Community and CRRAB were conceived by Dr. Helen Dimaras (The Hospital for Sick Children, Toronto, Ontario) in partnership with patients, health professionals, and researchers from across Canada. CRRAB is not a charity, incorporated organization or legal entity.
For more information, please email us at: retinoblastoma.research@sickkids.ca