On Tuesday April 30, 2019, CRRAB was represented at the annual Association for Research in Vision and Ophthalmology (ARVO) conference in a Special Interest Group Session on “Patient Engagement in Ophthalmology Research.”
Retinoblastoma Research Champion, Leslie Low, gave a personal account of her involvement in retinoblastoma research in Canada. Her talk highlighted the impact that the patient community can have when there is opportunity to engage in research as a genuine partner. Dr. Helen Dimaras gave an overview of CRRAB activities since its inception in 2016, covering the goals and accomplishments of its individual working groups.
National and international panelists included:
Dr. Andi Skilton, a Patient and Public Involvement and Engagement Senior Research Associate Lead from the NIHR Moorfields Biomedical Research Centre (London, UK);
Dr. Larry Mroz, a Research Navigator and Patient Engagement Co-ordinator from the British Columbia Strategy for Patient Oriented Research (SPOR) Support Unit, (Vancouver, Canada); and
Dr. Alastair K. Denniston, Consultant Ophthalmologist and Professor, University of Birmingham (Birmingham, UK).