Author: Roxanne Noronha

Each year, CRRAB hosts a Retinoblastoma Research Symposium to bring together retinoblastoma patients, survivors, family members, researchers, and health professionals to connect with peers, learn from each other, and discuss the future of retinoblastoma research and advocacy. While this main purpose is true, it may be difficult to imagine the feeling of attending the symposium if you haven’t participated before. Read what past attendees shared about their experience at the symposium.

[This is a] great opportunity to connect and continue to build relationships with patients and professionals. It helps me feel more informed and confident in advocating for my child’s care. This meeting really helps keep me motivated to continue to participate in CRRAB.

We (CRRAB) have developed so much as a group. Each year we are becoming more influential to others.

The research workshop is the strongest and most meaningful aspect of the symposium. [There’s] value in collaborating with the RB community.

It was great to meet so many people. I didn’t know anyone [in the community] prior to attending.

I have given feedback into studies that has been important. I have been able to connect with patients and professionals I wasn’t able to reach before.

I feel that I have contributed to the promotion of patient voices in research.

It has given us a voice! It connects us to the professionals we didn’t know existed and helps us understand research better. It helped us recognize how many people there are that are fighting for a better future for retinoblastoma.

Attend the next symposium on January 28-29, 2023. Click here to learn more about the upcoming event and register.