Author: Jay Kiew
Despite being a 30-year-old bilateral RB survivor, I’ve lived most of my life without visibility (hah) to any RB research or support communities. Taking ownership for that, I’ve mostly lived my life by charging ahead and not thinking too much about my relationship to RB.
A few months ago, during my annual ophthalmologist check-up, Dr. Katherine Paton walks in and immediately says “Jay, if you’re free this weekend, you should check out this conference called One RB World.”
It was quite the eye-opener (hah again) in terms of realizing how much support there was here in Canada, both in terms of available information, latest progressions in research and honestly, just an astounding number of people who were related to RB across research, survivorship, or family. Before this conference, I had literally zero connections to RB – and now I feel like I have the opportunity to reconnect to my cancer roots as I reflect on how it’s shaping my life now. I’m extremely grateful for the opportunity to join this community!