Author: Clayonia T. Colbert-Dorsey
The first months of the New Year 2021 has recently passed into the annals of history, yet the lessons learned remain. Foremost in thought is my ability to have participated as an attendee at my first Retinoblastoma Research Symposium. As an international attendee, I was and am grateful that doors were opened to allow broad, international participation by all those who encompass the village that is retinoblastoma. As I consider our collective journeys—battling with, overcoming despite, or surviving through—I am drawn to the word, “Ubuntu” a South African term meaning, “I am, because you are.” Doesn’t that represent “us” as a community!?
The 2021 Retinoblastoma Research Symposium, although held virtually, is a reminder of the interdependence that flows between our collective body. As researchers, parents, survivors, spouses, extended family, health practitioners, or other allies united within the battle, we were able to join in common-cause discussions of championing the retinoblastoma narrative. Much like the truly life-changing fellowship that occurs during the One Retinoblastoma World Conference, the Retinoblastoma Research Symposium created needed dialog, strategic planning, resiliency building, and one of my favorites—reuniting of old friends from across the globe.
Together, we share a path that has challenged our humanity. For many of us, that which once seemed like lonely despair, has turned into an affirmation of what we embody—a rainbow of hope, created by a quilt of many patches. To this end, I applaud the work taking place in Canada! We need more coalition building, not to mention greater efforts towards heightening awareness, especially regarding retinoblastoma research. Challenges that my parents experienced at the time of my diagnosis are, as we discussed, challenges that parents of today still face. This is unconscionable!
Therefore, in hope, I believe our ability to gather together, creates the village. Through our efforts, one day, we will overcome! Hats off to the Canadian Retinoblastoma Research Community for sounding a clarion call towards this quest.