Building on the success of a national retinoblastoma patient engagement strategy, Dr. Helen Dimaras at SickKids is establishing a study that aims to determine the “Top 10” retinoblastoma research priorities.
This project will be led by a national multidisciplinary steering committee. Please consider joining the steering committee if you are:
- Someone who has been diagnosed with retinoblastoma
- A relative or friend of someone diagnosed with retinoblastoma
- A health professional or researcher with an interest in retinoblastoma.
Steering committee members are asked to participate in a monthly meeting (in person at SickKids or via video conference) on the second Tuesday of the month for 1 hour. The study is scheduled to be completed in December 2017.
If you are interested in joining our steering committee, or want more information, please email retinoblastoma.research@sickkids.ca. Otherwise, you will hear about other opportunities to be involved when the study formally opens up.